A mother's desire to complete the Aspergers puzzle and connect with her beautiful son
Monday, February 25, 2013
Searching for Answers...and Finding Confidence
It happened yesterday.
It's been a while since it's happened. In fact, I'm not even sure I can tell you the last time. Which is great, considering it used to happen frequently and with much more fanfare.
Yes, my husband had to physically restrain Jacob while we were out and safely get him to the car.
Which means people were staring. I don't blame them. I'm sure they were curious as to why this child who appeared old enough to know better, was yelling in the store. I'm sure they were right there ready to intervene if needed, as he screamed, "No Daddy!" wondering if indeed Daddy was acting appropriately. I get it. But that doesn't mean I like it.
It used to be a nasty scene, of Jacob hitting, yelling, and just throwing an all out fit. When he was younger, we could simply scoop him up and carry him out of the store kicking and screaming, swiftly putting an end to the moment. We still got stares. Sometimes they were stares of disgust, an all-knowing look of "your kid is a brat". Other times it was a look of sympathy saying "I've been there". But as Jacob gets older the looks have changed, becoming less accepting, and getting him out of the situation is no where near as quick and easy.
I had a feeling yesterday as we pulled into the packed parking lot that it was not going to be a fun trip to the store. Our area had just been hit with a bad snowstorm, and another was looming, so the store was packed. So packed we had to park at the very end of the parking lot.
As always when something is out of the ordinary, I prepped Jacob for what to expect and what was expected of him. We went over how the store was very busy, how we were in a somewhat hurry as we were heading to church after running our errands, and how it was expected of him to stay by us and use walking feet in the store.
I always say that, but rarely does it happen.
We stepped into the store, a big box retailer, and Jacob was thrilled to spy a sample station up ahead. "Samples!" he yelled and took off in search of something yummy despite the fact that we had just finished lunch not ten minutes prior, and forgetting my request of "walking feet".
While I weaved through the mass of people making my way to the pharmacy, Jacob began to fill his tummy and strike up a conversation with the sample lady, an older woman who seemed pleased that this young boy was so interested in her product.
Sure enough after filling my prescription, I found Jacob standing in a packed aisle with the sample lady scouring the shelves for the last box of coconut chocolate energy bars at $5 a box. They found one, and Jacob began filling our cart with boxes of various flavors while the sample lady scurried around through the mess of people in search of coupons for me.
"We are not getting him energy bars!" my husband announced. "The last thing he needs is more energy, and they are $5 a box!"
I knew we weren't getting them. I had no intention of getting them for Jacob. But I also didn't want a meltdown right here in the middle of a packed aisle and with the sample lady there to witness it all. Instead we guided Jacob to the cereal bar aisle, and let him choose whatever he wanted. The aisle was still packed with people and Jacob was adding to the congestion as he went back and forth on what to choose. But in the end, he was happy, I was happy (at $1.50 a box who wouldn't be happy) and the energy bars were put aside.
We passed the sample lady and proceeded to the check out, meltdown squashed before it even started.
Ahh....but I shouldn't have been celebrating a victory so soon. As we stood in line waiting, Jacob noticed the CDs lining the endcap. "Mom, look. They have the NOW 45 CD," he told me. "I wonder if they have the NOW 43 CD here?" Jacob asked.
As I unloaded my items onto the conveyor belt, I notice that Jacob has politely pushed his way to the front of the line. The woman standing there graciously stepped aside as Jacob cuts in line, interrupting the conversation the cashier is having with the woman.
"Excuse me," Jacob says, "Do you have the NOW 43 CD?" he asks the cashier.
"Jacob, get back over here," I say and thankfully he obliges. The cashier clueless as to what my son had asked, continues on and the woman pays for her items.
"But mom! I just want to know if they have it!"
As the cashier begins our transaction, I explain to Jacob that the cashier couldn't possibly know if they have a certain CD in the store. And then opening my big mouth, I tell him that only the people working in electronics would know the answer.
Jacob was off.
He was heading for the electronics department, determined to get his answer to if they did in fact sell that CD. He had no money of his own, and he knew we don't just purchase items for him for no particular reason. But he had to know the answer, and he was off to find it.
My husband took off after him as I continued checking out. It wasn't long before they returned, my husband gently guiding Jacob toward the exit. As we moved as a family together, me pushing the cart with the baby sister in it, and my husband physically holding Jacob by the shoulders helping him walk, Jacob began to yell, "No Daddy! No!"
Of course people looked. Out of curiosity. Out of concern for this child. Out of judgment. They looked and stared, and my non-reactive husband did what he needed to do. He kept hold on my son for his own safety and walked him toward the door.
The stares don't bother me like they used to. For the most part I don't even notice anymore. When Jacob is having a moment my focus is on him and his safety. But for one moment as we passed the Starbucks located by the exit, I happened to look up, and I saw the sea of faces looking our way.
"Just get to the car," I kept thinking to myself. But we had an entire parking lot to walk, a parking lot full of impatient drivers trying to stock up for a snowstorm. None of those drivers were concerned about my son's safety. Their minds were filled with finding a parking spot, or their list of items needed if they happened to get snowed in for days. A child darting out of nowhere was not on their radar. But that was all that was on my mind.
In situations like this my husband and I both know how Jacob will react. He's a runner. And he wanted nothing more than to run back into the store to find his answer. And boy was he trying to get away from my husband.
"Daddy, let go!"
"No, Jacob, there are too many cars and I want you to be safe," my husband replied again not reacting.
"I promise I won't run, Daddy!" Jacob replied.
My husband wanting to trust our son loosened his grip slightly, just enough for Jacob to wiggle loose, and sure enough he darted out into traffic.
I screamed at my husband to grab Jacob. Thankfully he was fast enough and got hold of him again just as a car came barreling down the aisle.
I didn't care what people thought of us at that point. I didn't even know if anyone was looking at us. All I wanted was my son safely in the car so he couldn't bolt at a moments notice. I wanted him safe.
"Just get to the car, just get to the car..." I repeated in my mind.
We got there, finally, after more attempts at running, more yelling, and more chaos.
As my husband and I reflected on it later, we realized we handled it poorly. Sure we didn't react, not like we would have years ago pre-diagnosis when we were frustrated and unsure what was going on with our son. We've learned to keep our emotions in check when Jacob is upset. When we escalate, it only escalates the situation more. So we did a great job remaining calm despite how upset our son was about not finding the answer to his question.
In that regard we have come a long way. We've learned a lot on how to handle difficult moments with Jacob. With each meltdown, tantrum, or fit, as we dissect it after the fact, we realize what WE did wrong, and how to be better for next time.
What if we had simply let Jacob ask? What if we had waited those few extra minutes as he politely asked the electronics employee if they had the CD giving him his answer? Sure we may have been a few minutes late for our meeting at church, but Jacob would have been satisfied, and he would have walked out of the store on his own.
It wasn't Jacob's fault. He couldn't stop. He HAD to know the answer right at that moment. There was no reasoning, he was on a mission, and he needed to complete it. And we foiled his plan.
The silver lining in all this is, here is this sweet, polite boy who has enough confidence to ask the sample lady where her product is located. Confident enough to kindly ask the cashier for assistance. Confident enough to march over to the electronics department alone to find his answers. It doesn't matter where we are, the library, the store, a neighbor who happens to be outside, Jacob will not hesitate to strike up a conversation. It's times like this I am so proud of him. A boy who at seven struggles buttoning his pants, or opening a straw, yet believes in himself enough to seek out answers on his own.
So today I am joyful for my son's confidence. I am thankful for the great partner I have in parenting our son. And I am humbled in knowing that we will never have all the answers to parenting our son. And that is ok, as we continue to learn something new from Jacob every day in this journey as he searches for his own answers.
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